Pulmonary Endartectomy

Greetings everyone! I hope you are doing well. I have regained some momentum and started researching again. Basically, what I think I have found out is this. The only definitive treatment for Chronic Thromboembolic Pulmonary Hypertension is a Pulmonary Endartectomy which consists of well I probably shouldn't say on here. It may sicken a lot of non-medical people. Again, I find it fascinating, I just do not care to be on the receiving end of it. This surgery is not for everyone. It depends on where the damage is, how bad and if they think they can get it all-(this from my understanding). The surgery basically consists of cutting open the chest, shunting the blood with a machine so they can operate mostly bloodless and deeply cooling the heart for surgery. Not a fan of cold. :) ** I have been in contact with the NIH, National Institute of Health in Bethesda, MD. She said the fact that I am on blood thinners now may preclude me from being able to enroll me in any studies for LAM. She did say however obviously I have a very strange case going on and they would most likely want to see me. Sometimes they only see you once, sometimes you are called back for more testing, follow-up and/or studies/treatment. They fly you up there, pay for everything, poke and prod you, and then send you home with your results. This to help you find out what is wrong, yet more importantly to help the next generation of those who become afflicted, hopefully to prevent. ** I have been touched lately in many ways. A dear co-worker who broke my heart when she let me know she cries often for me. Another co-worker who doesn't like anyone to touch him who after reading my Mayo report came over and absolutely bear-hugged me. I truly believe he was praying over me as he hugged me; he also cried in front of everyone. Very humbled by all this. Another who slipped a gift card in my pocket without me even knowing it! The extra person at the altar praying for me, who wasn't there, no one saw this person praying for me. Just amazing really lately. So thankful to not only know, but to see that the Lord is there and working. To be a part of something so much bigger than myself. 2 Corinthians 4:8 We are hard pressed on every side, but not crushed; perplexed, but not in despair. Okay, I had to regroup and edit this and find the right scripture for the day.