Good news for a change!

Hey there, Went to St. Louis over the last week, my Dad has been sick but is doing better now, thankfully. Met with the specialist while there and he stated he believes that Mayo has an "alarmist" position with their results and he is not convinced I have an enlarged pulmonary artery or pulmonary hypertension! He and others in his network looked at my CT's and other reports and they don't see it. That is GREAT NEWS! for those who don't know the seriousness of it-- trust me-it's great news! He ran some more blood tests and is going to consult with the good Dr in Ohio, and then get back to me in a week. He even said he thinks I can get off the Xarelto (blood thinner) within 6 months; I won't need to take it for a lifetime! Woot! Woot! Hoping this is all right of course. But this was the glimmer of hope I was hoping for! God is good! I do not understand it all yet and I keep thinking of more questions- but for now, for today I am relieved. We talked about the LAM and how it affects every woman differently and how I was trying to figure it out if I have mild LAM then why do I get so much air hunger at times and shortness of breath for no reason. No apparent rhyme or reason when it strikes. Sometimes, like when I bend over or sit up or walk up stairs I get that way. Yet, also I can just be sitting somewhere or standing, and it hits- I can't breathe well. He then kind of questioned my terming it "mild LAM," as if there was such a thing and said it just depends on so much. The vital signs often do not fit how a LAM patient is breathing or feeling. I did another PFT test and from what I glanced at- I believe this test was better than the last one I took there. Wondering if that is from the blood thinners and me getting more blood/oxygen around? Who knows? Excited now because if I do not have pulmonary hypertension or an enlarged artery then I should be able to exercise! I of course forgot to ask him about that. This also leads to more questions though, as in- If these are micro clots and we do not know why they are there, how can we be sure they will go away. (I do not want another biopsy- EVER.) And why wouldn't I need to take them for a lifetime? If this chest pain is not from pulmonary hypertension/enlarged pulmonary artery and not supposed to be able to be made from the LAM, then what is it? It's all good though. I got a sliver of good news and I am clinging to it! Thank you Jesus! Pray for those with LAM and rare incurable diseases or just diseases in general. ****** The Sovereign Lord is my strength; he makes my feet like the feet of a deer, he enables me to tread on the heights. Habakkuk 3:19 NIV