Monday, January 12, 2015
Lymphangioleiomyomatosis - A new lease on life maybe?
As you know I am now on oxygen at night and when I lay down. I felt better the first few days on it, but then the lovely monthly cycle hit and I have been of course short of breath, extremely fatigued and just in general do not feel well. My daughter noticed how short of breath I was. Hoping for a better week. I do feel I wake up better since the onset of oxygen. I only am groggy for a little bit and then I seem to perk up better. Not sure it lasts as long as I'd like but it's a start. I also feel I have more brain power, if that makes sense. I think I am beginning to think a tad bit more clearly. Told the kids don't think I can get any of the lost brain cells back from being so short of oxygen for who knows how many years but as I said before- it's a start. I am hoping I will get more focused. I did notice that I had been stepping out of living life the last couple/few years and couldn't explain it. I just felt it was because of all the stress with the child molester issue and adoption and change of location and diagnosis etc. but looking back I think it started before then. I just felt less and less involved in life, in daily activities and everything basically. I was checking out of life, or something was checking me out of it. Hard to explain. I wonder if it was just the lack of oxygen. Boy, soooooo many times I remember telling my husband, "I just feel like my brain is not getting enough oxygen." And wow- I was right. I know my body best. Scary :) Hoping to check back into life. To start caring again, or better yet to have the energy to start caring again. To be motivated in everything I do. So again bittersweet emotions here, grieving my old life of being able to fall on the couch and take a nap with out being hooked to an oxygen concentrator-- I did that today and paid the price with horrendous headache and no energy, but being excited about a new start and a new energy for life.
Thank you Lord for knowing what I need when I need it.
Hope you have a blessed week and the energy to go out and make a difference in someone's life. I saw something on TV I think it was tonight or fb not sure, but I can not give credit to the person who said it because it blinked off before I had time to read the name fully-- but it said basically -- Do not mistake my kindness for weakness. I really like that.. I think a lot of people do not realize that about me.
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