The latest

Hello! I am recovering from a surgery I never want again. Worst thing is to have the chest tube inside you. Anyway, more on that later. Just wanted to touch base and say at first the diagnosis came back LAM. But then after looking the spelling I saw the spelled it Lymphangiomyomatosis, which is different from LAM- LymphangioLEIOmyomatosis. I called and confirmed this with the LAM foundation. They are indeed 2 different diseases. So which one do I have. They even sent it off to this Anna person in NY who reportedly known for her strong ability in pathology. They were also to send it to MAYO clinic, which I found out later they did not. It is now on it's way to MAYO to be tested. I would like to know what disease I really have, is this just a typo by someone who thought the words were interchangeable or do I have a different disease? Is this such a rare disease that even those skilled in medical area do not realize the difference or catch the spelling? So, we will wait another week. I hope to have results by then. My right arm is still messed up. It feels like it is ripped/ripping from the upper tricep ligament. I am able to use it more. So here we are. Spring is on it's way is it not? I love the sunshine, the birds, the sound of childrens' laughter outdoors! Enjoy it. Till next time.