Saturday, April 26, 2014

Update

Hello. Been a little while. Hadn't really felt like writing too much lately. I think I am just feeling sick of this junk. I feel like I am in a rush- but for what? Closure?? What would closure even look like in this situation. Prob not closure. I think maybe just to move on to the next step. Maybe to get some good news that this is all curable. Maybe to wake up and find my life is back to how it used to be. Yes, I am whining, tired, worn out, need a vacation from work. Lifted the lawn mower up with my son onto the back of the truck bed and then later that day helped lift a somewhat unresponsive patient up on the bed. Not good. It's been out all week since then. I can not any longer take Ibuprofen since I am now on blood thinners due to the clots. So unless I take stronger meds like hydrocodone or tramadol I am stuck just suffering as Tylenol doesn't get this type of pain. *** I did receive an email back from the Dr in Cincinnati. He thinks for sure there are blood clots based off the biopsy sample. No way they could be anything but. He also is leaning auto-immune disease still. Possibly even a long shot he said, but IgG4. He did warn me there is no way to put what is going on in my lungs into an easy diagnosis. He thinks I have LAM and something else. Lung issues are hard to put in a box and not easy to figure out or solve. I did tell him I would come see him as a patient and then we will go from there. That really is all that is new with me. Feels like same old stuff different day. Kids are trying to talk me into taking them to Florida again. Not sure we can swing it- they said they are willing to save their money from their babysitting jobs and lawn mowing company etc etc. to help pay for it! I sure would like to go. Just to lay there and veg on the warm sand with the wind, sun and surf. The sights and sounds of the birds and children laughing and playing. My kind of day. Have a good week. Talk to you soon. I had a wonderful scripture for you and now I forgot it. Was in Deuteronomy I believe. Oh well. John 14:27 Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. John 14:26-28 (in Context) NO FEAR. I forgot to tell you the best part- the Dr does NOT think I need a pulmonary endartectomy (although haven't figured out how else to get the blood clots out?) nor do I need a lung transplant! Don't know if he meant now or in future. I can't wait to pick his brain in depth. Starting my list of questions.

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