Saturday, December 28, 2013
Hoping you had a wonderful Christmas celebrating the birth of the Savior, Jesus! We had a sweet time.
Only thing new here is the MRI is done, results are in, and so far nothing I can tell about there being any angiomyolipomas. So the next step should be biopsy, but since I can now not get it done in time this year, with my co-pays and deductibles all met, I am somewhat frustrated. Trying to remember everything happens for a reason. This is A LOT of money out of pocket for me though. Not very happy about that.
The Dr. in Cincinnati still thinks it may now not be LAM and be Sjogrens manifesting as lung cysts. Still trying to figure what that means? I am beginning to think he might be right.
Had to call the nurse manager at the LAM clinic to get the nurse to even call me back! One of the questions I wanted to know that didn't get answered there at my visit with him, was what were the other 3-4 diagnoses that it could be. I wanted to know them by name so I could research them, because if none of these are curable, then there is no big hurry to get biopsy so I would just wait until I absolutely needed to have it done. I was told that he wasn't going to talk about the next step until he saw my MRI! Really? Not impressed. So hopefully I might have some more info by the end of next week, but with holiday and poor communication I doubt it.
That is about all that is new with me. Take care.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment