Not much

Hey, It's been a while. Hope you are doing well. Not a whole lot new here. Going to Barnes/Wash U soon. They tried to re-order some tests that I already took, like VQ scan and Echo, then I realized that I had never sent this Dr. in St. Louis my updated chart/files from the past year since the lung biopsy so I had to sign a lot of paperwork to get that done. So far I think they are all sent, CD's and all of the MRI's and CT's. I remember way back when, deciding not to send them because I wasn't planning on going back to that Dr/nurse/office. How things change. *** Pastor preached a timely message on how David, King David in the Bible, consistently asked the Lord, inquired of the Lord what he should do. And then he obeyes. He gave a warning to a lot of us in the church that we were about to do something that was just going out on our own, in our own knowledge and not what the Lord wanted us to specifically do for this time in our life. Was very timely as I have been trying to figure all this out and make decisions on which direction to head next. So, I have been slowing down and asking the Lord to guide me and go before me and lead me/tell me what I should be doing, if anything and when. So needed to hear this. I just love our church/pastor. *** Same old stuff, chest pain and shortness of breath, air hunger. Comes and go, often no rhyme or reason, scary at times. The fatigue comes and goes too. It's shocking how it sneaks up on you. But-you just regroup and go on. Way too much to do, no time to feel too sorry for myself. Getting tired of the whole thing I must say. Just want to focus on having a summer and already it's planned out wayyyyyyyyyyyyyy too much with Dr appt's, tests, etc... Feel like I am going to miss my favorite time of year and it's right under my nose. ** I still would request your prayer for the neighbors to move. I can not wait to be able to elaborate on this. The time is coming soon. ***Remember to inquire of the Lord in the big things and the little things and be specific in your requests. Have a beautiful day!

Rough night

Having a rough night tonight.. Not sure why.. Just feel under pressure.. both figuratively and literally. Frustrated with the progress on getting in to see the right specialist.. Just worn out keeping track of it all. A little nervous tonight. Don't normally get like this.. thinking I am just tired and need some sleep. So far everything is still coming back negative. CT and echo done. doesn't show too much at this point. still needing the right heart cath. trying to debate Barnes or Mayo.. Barnes is in the network so obviously cheaper and family there, but Mayo is known for being a whole lot better.. Trying to decide. Ever had time tick slow but yet too fast at the same time. I feel as if I am being stretched and pulled at increasing rate, but time is passing by slowly while it is happening. Weird feeling. Hard to describe. Don't like it or understand it fully. Was glad to make a few people smile today and encourage them. Have a good night. Hug your children and spend more time with them today then you did yesterday. Matthew 19:26 With God all things are possible...

More updates

Hello! Been a long winter. Hope you are having warm sunny weather where you are, literally and figuratively. I did decide to go see the good Dr. in Cincinnati. Will be going there this summer.. Also decided to go to the NIH. Most all of my tests are coming back negative. They are running quite a few rare blood tests trying to figure out what is causing the blood clots in my lungs. They think they are contained to the lungs. One of the tests came back positive. A lupus anticoagulant antibody. Basically what I have learned from the "good Dr." (that's what I have nicknamed him), is that you can have this and have Lupus, or you can not have Lupus and have this anticoagulant. In simple form, the body makes a substance that doesn't allow the blood to clot, it allows it to flow nicely as it should, well the anticoagulant antibody irrationally attacks the blood/blood substance and can make the blood clot. This could be the cause of my problems. They are also testing for hypersensitivity to mold as our basement has flooded 3 diff times and of course the place where I work has its share of issues too. We will wait another week or 2 to get these back. I keep making the mistake, or causing a testing of my faith when I get on the internet and read up about a lot of this. For instance, I read that the pulmonary hypertension/enlarged arteries I have give you a lifespan of 3 years from onset of symptoms if left untreated. Well, obviously that could tend to get you down if you allow it to. The key is to give your praise to the Lord in all situations as He is in control and He alone knows what is on the other side of this mountain and how he wants to use you to bring others to a saving relationship with Jesus Christ. I do need to educate myself on this, it's the only way to keep pushing the doctors etc, since I am the general contractor of this adventure, second to the Lord of course. My Mayo report still has not shown up in the computer system of the hospital I go to, meaning now for 2 specialist appts it has not een in there. (And, no I did no make a master file yet- my bad) So I called yesterday and left a msg for the director of pathology to call me back to discuss this oversight. What if I presented to the ER, unless they knew my situation, the ER docs would not be able to pull up that report and see what was really going on with me, thus wasting valuable time in my treatment, possibly harming me inadvertently. So we will see where that goes. The good Dr. wants me to have that right heart cath, so I will do that hopefully soon at Barnes. That will show what level the pressures are in my heart and lungs. When your lungs are clogged with blood clots the heart has to work harder to push the blood through the lungs, thus causing an enlarged pulmonary artery and then eventually it backs up/makes the heart work harder and leads to right sided heart failure. Hebrews 11:6 And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him. Hebrews 11:5-7 (in Context) Hebrews 11