Tuesday, May 13, 2014

More updates

Hello! Been a long winter. Hope you are having warm sunny weather where you are, literally and figuratively. I did decide to go see the good Dr. in Cincinnati. Will be going there this summer.. Also decided to go to the NIH. Most all of my tests are coming back negative. They are running quite a few rare blood tests trying to figure out what is causing the blood clots in my lungs. They think they are contained to the lungs. One of the tests came back positive. A lupus anticoagulant antibody. Basically what I have learned from the "good Dr." (that's what I have nicknamed him), is that you can have this and have Lupus, or you can not have Lupus and have this anticoagulant. In simple form, the body makes a substance that doesn't allow the blood to clot, it allows it to flow nicely as it should, well the anticoagulant antibody irrationally attacks the blood/blood substance and can make the blood clot. This could be the cause of my problems. They are also testing for hypersensitivity to mold as our basement has flooded 3 diff times and of course the place where I work has its share of issues too. We will wait another week or 2 to get these back. I keep making the mistake, or causing a testing of my faith when I get on the internet and read up about a lot of this. For instance, I read that the pulmonary hypertension/enlarged arteries I have give you a lifespan of 3 years from onset of symptoms if left untreated. Well, obviously that could tend to get you down if you allow it to. The key is to give your praise to the Lord in all situations as He is in control and He alone knows what is on the other side of this mountain and how he wants to use you to bring others to a saving relationship with Jesus Christ. I do need to educate myself on this, it's the only way to keep pushing the doctors etc, since I am the general contractor of this adventure, second to the Lord of course. My Mayo report still has not shown up in the computer system of the hospital I go to, meaning now for 2 specialist appts it has not een in there. (And, no I did no make a master file yet- my bad) So I called yesterday and left a msg for the director of pathology to call me back to discuss this oversight. What if I presented to the ER, unless they knew my situation, the ER docs would not be able to pull up that report and see what was really going on with me, thus wasting valuable time in my treatment, possibly harming me inadvertently. So we will see where that goes. The good Dr. wants me to have that right heart cath, so I will do that hopefully soon at Barnes. That will show what level the pressures are in my heart and lungs. When your lungs are clogged with blood clots the heart has to work harder to push the blood through the lungs, thus causing an enlarged pulmonary artery and then eventually it backs up/makes the heart work harder and leads to right sided heart failure. Hebrews 11:6 And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him. Hebrews 11:5-7 (in Context) Hebrews 11

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