More cycles

Well, I met with the pulmonologist yesterday, the VEGF-D tests came in lower than they expected. It still doesn't mean I do not have LAM. It may mean I still have to have the open-lung biopsy I have been dreading. I guess I still don't understand it all. I do realize that it could be something else and they want to confirm it, but on some level after a positive CT, (LAM does not look like other diseases, it's very obvious) I do not understand why they just can not let it be. Is this to please the insurance companies? I have mixed emotions on this. Obviously, the best outcome would be to figure out it is not LAM after all and to find it's something that is curable. I guess my beef is that do I really have to go through this and then find out it cost me time/money and possibly complications to find out it is still LAM. I'd say the fear is getting to me on this. I absolutely do not want that surgery. I can not afford to miss work, my family, my church etc. Today, thankfully my chest pain, (that they still tell me doesn't happen with LAM) has subsided for the most part. It's only hanging around a "1" today on a scale from 0-10. I told the Dr. that many people I have talked to with LAM say they have chest pain every day, even ones with mild/early cases. The Dr. didn't know what to tell me, and maybe that it was GERD? I think comments like that make most LAM patients angry. Again, I am thankful for sunny days, and good friends who pray and lift me up. Thankful for my husband and kids. Thankful for the laughter that abounds in our home! I do hope your home is filled with sunshine and laughter. If not, I would say, Keep your chin up and take it one day at a time. Do one kind thing for someone in your household that wasn't expecting that from you. Have a beautiful day.