Monday, November 4, 2013
Welcome!
Today I began blogging. I love to write and this is a great outlet. My reason for doing this is the doctors believe I have LAM- Lymphangioleiomyomatosis. 24 letters long; not sure why I felt the need to count it, but I did. Basically, it means that I have a rare incurable (at this time) disease that allows the growth of cells that take over the good lung tissue and cause me to have chest pain and shortness of breath. I am told I have a mild case. Every case is different, but they mostly all have the same thing in common, the recipient is a woman. The last webpage I remember reading on it said only 10 men in the world are diagnosed. They believe it is related to estrogen. It is a progressive disease and right now there is no cure.
The 5 stages of grief I keep telling myself I am not going to go through, however I find myself somewhere close to the anger stage lately. I think I must be in denial still, although I keep wanting to deny that I am in denial :) I call it shock. I keep thinking I will wake up and life will be as it was before the day I checked into the ER for 3 days of chest pain. I have skipped the bargaining for right now and have jumped right into the depression stage. They say in this stage you may have regrets for time not spent enough with loved ones. I am blessed since we homeschool I completely feel I have given my children all of my time that I can and I am extremely grateful to God for having me choose that path.
Welcome to my blog, I'd like to invite you to pull up a chair, grab a cup of coffee and join me on this path not well-traveled, if only as an observer. I'd like to think my love of writing will show through and you will feel as if you are right here with me, cheering me on, being there for me and growing with me in this journey and in return I can hope to encourage you, make you laugh and cry, help to think about what kind of legacy you want to leave. Welcome friend!
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2 comments:
I am SO sorry to hear about this! I had to pick my jaw off the floor when I read this. You're the exact type of person that begets the classic "Bad things happen to good people." I know only a little about lymphangioleiomyomatosis; it is rare. I know the pulmonologists call them, affectionately, "Lammies." :-) Sirolimus seems to the the treatment of choice but I do know there is work going on to improve treatment modalities.
I will be honored to come on here, pull up a chair, and cheer you on, even as only an observer. I know you to be one of the most real, honestly good people I've ever met and my fervent prayers will go up on your behalf. If you are okay with it, I will include your name on the prayer list at St. Agnes, my church. I know you're not Catholic, but I will pray a novena for you (a 9-day prayer for a particular purpose). After all, we both are children of God and servers of Christ.
My best wishes and prayers for you. I will come back regularly and check in.
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
Yes! We both love the Lord, Thank you for praying.. I welcome comments as they encourage me and I hope to do the same for you!
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