Thursday, November 28, 2013
Thanksgiving
So far I believe I have found out that a person can not pass LAM on through blood in utero/urine/nursing. I am glad because I began to get a little unnerved at the thought I might have accidently passed something on to my children. Courage came unexpectedly and I called the Dr on Wednesday to see if 1. they had all my info/labs/reports of CT/xray and 2. if the nurse knew if he would follow a certain protocol and order a lung biopsy or not, and if so should I have it done before I come to see him so he can have results or??? I've been reading and I think (self-diagnosing is often a no-no) I need to get a CT of my abdomen first, because if I have benign tumors on my organs than there is no need for a biopsy. Time is standing still lately. I can not wait to see the Dr. because I am still hoping they are all wrong. You will probably get tired of me saying I am still hoping :)
Had a few good days, no chest pain and not too much shortness of breath. Today, however it crept in. Not so much the chest pain, just the shortness of breath, doing the weirdest things too, putting on a shirt, and just sitting, amongst the normal coming up the stairs. Today while talking to a patient, it crept up on me and I was out of breath just talking to her. I was too embarrassed to stop talking and take a deep breath or two, until I felt stable, and so I just kept talking. It is a wonder I didn't pass out. I was pretty winded. I suppose over time the pride will leave and the need to breathe will kick in! Still thinking I am going to get in shape so I can see which symptoms are from being out of shape and which are from the thin-walled cysts in the lungs. Hope you had a fantastic Thanksgiving. I know we did, great meal and good company. We played cards and laughed and laughed. We have a lot to be grateful for, not only as a country but individually. Let us not take it for granted. Enjoy your week. Stay safe and I'll talk to you soon.
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